April 25, 2019 – Still kicking

I realized I hadn’t updated in six months. Not much to update when life is just chugging along! It will be three YEARS since his diagnosis in two weeks. He’s really been lucky is the course of his disease.

M had his CT scan in January. His oncologist, Dr. K, told him there was nothing he sees as concerning on his scan. I read the radiologist’s report and that’s not the full truth as he noted a few concerning spots. M goes back at the end of May for his next CT and then has a MRI the week after that.

Now, it hasn’t been all rainbows and unicorns. The multiple MRIs seem to have side effects that worsen his pain. The neuropathy has not faded in the least but he’s added on full body joint and bone pain that seems to be tied to gadolinium toxicity from the contrast dye. M does NOT have a good track record with side effects.

One thing that happened recently, M almost looks like he had a small stroke. His mouth has a small droopy twist on one side. I suggested we go in to Dr. L early but nope, he doesn’t want to do that. His memory issues definitely seem worse as well. So many conversations happen again and again and I’ll think he’s got it and then, nope, next day he’s either forgotten or has details all twisted.

But all in all, M is as fine as someone with Stage 4 lung cancer can be. He continues to be “the healthiest sick person I know.”