Last Thursday was Gamma Knife #4 treating brain tumors #16 & #17… all went well. M got tired Friday – Sunday but is back to pretty much normal again. Now we’re on reprieve until at least April / May barring any bumps in the road. May will be TWO years since diagnosis!
Blog
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December 18, 2017 – Results
No change in the lungs, one new brain tumor. Gamma Knife in January, we’ll hit our out of pocket max on Jan 11, two days earlier than last year. Last year he had his scan in December and had one and when we went back in January there were ten. Hopefully we don’t have that again.
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December 9, 2017
M had a CT scan on the 28th. We get the results Monday to find out what’s going on in his lungs. Waiting two weeks is torture. The wait is my fault, as an accountant it’s next to impossible to get time off for the first five days of the month so I had to change his appointment from the 4th to the 11th. Then he has an MRI on the 18th to check up on his brain.
We’re at 19 months since his diagnosis. He’s still seeming relatively healthy but there are chinks showing in his armor… it’s worrisome but what can you do…
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Fuck you and your opioid crisis
I get so irritated when I see yet another story about the misuse of opiods and how access is going to be further restricted. M beats himself up about taking pain meds because he feels like a criminal. Watch your husband crumple in pain because he’s trying not to take another pain pill so he doesn’t run out before he’s “supposed” to and see how you feel about limiting access.
I used to tell him, don’t worry, they aren’t talking about stage four, terminal cancer patients, they aren’t going to limit access for people like you… but now it looks like that isn’t going to remain true.
So fuck you addicts, fuck you for making it so terminal patients have to live in pain for the limited life they get… your deaths should be as pain filled as your addiction has caused their lives to be.
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Why do I eat the donuts?
This is not a facetious question… I don’t understand the thought process in my brain.
Intellectually: eat donuts means get sick and consume too many calories, therefore don’t eat the donuts
However, it appears Homer Simpson lurks inside my brain grunting, “eat all the donuts, nom nom nom”
What prompted this post? I bought donuts yesterday and ate 2/3 of them throughout the day, then this morning before leaving for work I ate the remainder. I felt like I wanted to pull over and get sick all the way to work. Hopefully I remember this experience the next time the internal Homer is being loud and obnoxious.
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only two months this time
I got the promotion.
Three weeks ago I joined a gym.
Today I turn 45.
Here’s a quilt I recently finished :
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July 8, 2017 – Short Update
So no real changes. M is still the healthiest sick person I know. The only thing I really notice right now is the forgetfulness. A conversation can be forgotten in an hour and we’ll have it again, or I’ll tell him plans, then when it becomes time find out that he doesn’t remember at all. Sometimes he’ll remember with prompting, sometimes he won’t. I try not to get frustrated but it can be hard…
My supervisor called us all into her office last week. She’s been diagnosed with Stage 1 breast cancer, HER2. It was all I could do to stay in there and not cry. She’ll have surgery in a few weeks after the tests come back to determine if it will be a lumpectomy or a mastectomy, then chemo. She seems to have a good attitude which will help her in the weeks to come!
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has it really been a year?
I didn’t realize I’d never come back and posted again after the last update. ..
So, to catch up my loyal readership (lol, somebody might stumble on this blog by accident but I don’t think there are any regular readers)… the husband is still alive, beating some amazing odds. He’s actually the healthiest sick person I know! He’s had 15 brain tumors treated and chemo for the lung. The chemo almost killed him, he stopped after three treatments but it seems to have done it’s job.
My job is going awesome. I’m applying for a promotion this week so, fingers crossed! And now, I have to get ready to go to said job…
Hopefully it won’t be another year until the next update.
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May 7, 2017 – Happy Birthday to M
As he says, he’s one year old today.
One year ago today we were getting the news that M didn’t have another stroke, but rather there were multiple tumors in his brain and a mass in his lungs… I didn’t think he’d make Christmas let alone the full year but he’s a fighter! I often refer to him as “the healthiest sick person I know.”
The last Gamma Knife went smoothly, M doesn’t have any doctor appointments until August so the summer is his! I’m sure there will be more brain mets at that point but we’ll worry about that then.
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April 19, 2017 – M’s Cancer is Weird
Weird is how Dr. K described M’s cancer last week since the CT scan shows nothing significant happening in the lung but yet M continues to have new brain mets. This week’s appointment with Dr. L shows only one new brain tumor. Gamma Knife again next Tuesday. Since there’s only the one, M doesn’t have to have the whole screwed on frame… instead it will be a mask formed to his face and a pillow formed to his head.
I have to vent: I really don’t like Dr. K. He never gives facts or details just superlatives that remind me of a snake oil salesman. Another thing that irritates me is that he doesn’t wear anything “doctor-y”, rather he has on an expensive suit which just seems to rub me the wrong way…